Anne Tagonist (tagonist) wrote,
Anne Tagonist
tagonist

New Ways of Thinking About Old Ways

I find myself often repeating my idea, in real life, that "alternative" medicine isn't, and that hippies aren't for alternatives anyway. What I mean is that the basic narrative of western medicine is the same, for both "allopathic" and "alternative" schools, and that this is not the only way to think about health and health care, and the fringes and borders are interesting and productive thought experiments.

The narrative of western medicine is this: everybody has a body, which is pretty much the same, under normal circumstances, as everybody else's body in terms of how it works and what organs do what. The body is made up of organs, tissues, and chemicals, all of which are defined by their organization and their function, and they are primarily functional towards a state of health. Occasionally, these chemicals or tissues or organs are somehow deranged, and do not operate as they should. Possibly they were formed wrong, or possibly they were injured, or possibly they were damaged as a result of exposure to an abnormal substance or effect, or a normal substance or effect in abnormal quantities or concentration. The result of this malfunctioning or damaged tissue is a disease which, after a period of development, becomes tangible to you (the person) as an illness. To manage this illness, its necessary to consult a professional, and to transfer some of the custody of that body to them, and introduce either a small quantity of a novel substance, or else a physical rearrangement, to restore function to the damaged tissue, or else compensate for it. This, if done successfully, will remove the illness and possibly the underlying disease. The substance or rearrangement can be herbal tinctures, antibiotics, massage- but the narrative is the same.

The narrative medicine idea, which is gaining ground in the "theory of medical theory" school of thought says that illness- the sense of being unwell- is primary. Around this illness, patients and doctors collaborate to come up with a common narrative that includes a set of defined symptoms ("not feeling well" becomes "nausea after eating" etc) and a diagnosis. I won't talk about this too much here except to acknowledge it as a partial framework for my own critical stance. Narrative theorists are, when they aren't praising memoirs, attempting to create a system of "explanatory models" that detail how a patient is supposed to feel and act, and how they are supposed to understand their body, the origin of their problems, their likely prognosis, treatments, etc, according to a given culture. This is a useful tool, but not what I'm going to go into today.

The narrative of herbal medicine is that herbalism (either western or "traditional chinese") is completely different from allopathic medicine, but there are other medical practices within allopathic medicine that diverge more acutely from this narrative and, not coincidentally, they tend to highly controversial.

Specifically, the examples I'm thinking are: vaccinations, cosmetic surgery, classical musicians using beta-blockers, medical marijuana, giving ritalin to kids to make them behave, and the placebo effect. With the exception of the last example, all of these use medical or medical grade technology in circumstances where "there's nothing wrong in the first place." Nobody claims that being born without a resistance to, say, measles is some sort of defect. Classical musicians (and lawyers, and other people prone to stage anxiety or fright) aren't somehow ill- the medication (performance enhancing, quite literally) is an augmentation, not a correction. Medical marijuana is frequently attacked as being a roundabout way to treat the various conditions for which it is prescribed- that is, more chemically and tissue-level specific treatments are available, why use such a general substance? The ritalin question has been done to death, but even proponents admit there is no chemical or physical lesion detectable that "explains" ADD. And its interesting to note that ritalin (and adderall, and provigil) are acquiring a cachet outside the medical sphere as performance-enhancers for adults in intellectually strenuous environments.

Defenders of all of these practices are also quick to compare them to the standard western narrative- perhaps the lesion responsible for ADD isn't detectable yet, but surely it exists beyond the threshold of our technology? Is stage fright classifiable as a disease? But even the staunchest opponents of "allopathic" medicine (perhaps especially the staunch opponents) are quick to equate the schematic non-conformity of these practices with moral error and suspicion.

Not that there aren't reasons to be uncomfortable with, say, mass-dosing ritalin to eight-year-olds on weekdays only, but the reason has nothing to do with whether or not ADD is a "legitimate disease." Arguments about medical (or any other kind of) marijuana aren't really about what works "best" in treating the specific malfunctions of diseases. And vaccines... hoo boy, vaccines. (That chain email about swine flu vaccine causing smallpox or whatever- just look up the name of the author and google her other works, okay? SKETCHball city!)

There are other particularities about the western model. For instance, the disease is always personal, and the cure is always personal as well. The question doctors seek to answer is not "where did this disease come from?" but "why this person, at this time, in this way?" To say, as an unnamed (seriously, even Lori Alvord doesn't name the guy) Navajo elder told CDC epidemiologists that victims of hantavirus had died from "too much rain" is simply too far outside the western paradigm. We accept that these diseases are out there and strike all the time, and concern ourselves with how each individual can be made safer, or cured.

In certain cases we accept that the person causing the trouble and the person getting sick might not be the same. What we don't accept is that there not be a direct, physical connection to explain the causality. The physical connection has to involve the individual who gets sick. For instance, if I burn lots of coal, and you in the downwind county get pancreatic cancer, okay, we accept that you breathed the heavy metals in the soot and fumes (I'm making this up- I don't know about pancreatic cancer and coal.) If I yell at my kids, and a stranger two blocks away gets pancreatic cancer, we don't accept that. If I do coke and stop going to church, and my great-grandchildren starve mysteriously, we don't accept a connection. Other cultures have.

Social questions are also viewed in the same language and schemata as individual health. We accept that there are social causes for illness- breast cancer, or obesity, are generally accepted to follow social trends- but we assume that here again there is an error at the root of the problem. There is something unnatural in the world, and only by eliminating it and returning to an innate order of things will the symptoms (youth violence, diabetes) be repaired or prevented.

Let me be clear- this is not a "western medicine sucks" essay. It isn't even an "herbal medicine isn't as great as crimethincers claim it is" essay. There are a lot of reasons to appreciate the western model of illness, disease, health, and medicine. But there are problems too. One of these, which relates back to alternative medicine, is the problem of the ideal.

If diseases are explained by erroneous or malfunctioning parts of a whole, social or bodily, then a "perfect" or uninjured body or society must be our birthright. In fact, goes the narrative, you would have this body if you weren't sick. In the narrowly-defined medical field this pops up as an obsession with testing, with locating minute lesions or chemical variations which indicate an as-yet-unexperienced but nevertheless Wrong and Bad disease, possibly one that will kill you if you don't correct it now. If you don't get ovarian testing push-pieces from the NYT forwarded to you by your mother, well, your family is different from mine!

In the broadly-defined medical field, though, this belief in the platonic ideal body, the "who would you be if you'd never been hurt," gives rise to a panoply of guilt-inducing narratives of the fall from grace, personal irresponsibility, or the inadequacy of one's stewardship of one's life, and of course a nation full of rebirthing, detoxification, healing, "natural diets" and other remedies that purport to return you to your innocence. I find this completely at odds with the very concept of being alive- you don't remain untouched, and you weren't perfect to begin with, and there's no such thing as perfection, and everybody is always different and the only appropriate answer to the question "who would you be if you'd never been hurt?" is a dumbfounded stare. But the damage it does to people's hearts, especially people who try, over and over again, to regain (or attain) some form of perfection and "fail" is tragic.

The social manifestations of this are, to me, the most disturbing of all. If we accept, with some trepidation, that there is a social lesion underlying every social disease, does this create, as it does with the individual body, the idea that somewhere out there is a pure, uncorrupted, disease free human society? What are we doing wrong? How can we get there? This is the scariest question of all, to me. While I have a great deal of respect for those cultures (hey look, Navajos again) that have maintained a particular way of life as a spiritual form of health, and I wish I could get into that further, I am frightened of a world that uses the idea of health to reject the inherent heterodoxy of people and their self-organizations. I mean for one thing, if you were to take a numerical poll, Americans would believe social health had something to do with that jesus guy. Yikes.

At the same time, though, I really don't want this to be a hater piece. We can't imagine social cures because we admit we can't agree on (or, if you get us drunk, we admit we can't even conceive of) a lesion-less society. That would be utopia, in the old school Thomas More sense, and even utopians don't buy that shit off the dock any more. Still, its possible to imagine a vision of health care in which non-lesional interventions that do people good- beta blocked violinists, artists on psychedelics, et al- are accepted and developed, and a similar vision is applied to the world, to the idea of "living right" and to the idea of "how we should be." That is, I don't want to see actual human suffering attributed to the specific malfunctions in a social body, but I would like to see some development of methods by which societies can start to work better, even if in diverse ways. That is, improvement without guilt.

I've somewhat lost the thread of my own post here. Take it away, commenters!

A

So the story about the hantavirus: I get my "official" data from The Scalpel and the Silver Bear but I'd heard other versions of this elsewhere. When a few people in their early twenties suddenly died of a mysterious virulent illness (one shortly after an unrelated surgery) in the Four Corners reservation, the CDC mobilized and sent researchers to track down what looked like a pretty scary outbreak. At one point somebody asked a Navajo singer what was going on, and the singer told him there was too much rain. He also showed the CDC epidemiologist a photograph of an old sand painting with a mouse in the corner and said that mice were involved. At the time he was dismissed, because he was answering a different question. The singer understood that people died, but didn't accept that the disease should be around in circulation. The CDC understood that the disease existed but didn't accept that these young people should have died of it. As it turned out, the disease was hantavirus, spread by dried mouse urine. The mice had moved indoors into people's homes and trailers, after reproducing like crazy when an unusually wet year created a temporary surplus of pinon nuts, and then going hungry when the nut harvest ended.
I'm not going to get into the discussion of Navajo vs. Diné. When I was there and trying to learn the language (ha! that was a laugh!) everybody, white or native, said Navajo. Yes, I know what nabeehu means and I can even tell you what language its a word in. I'm just going by what was said at the time.
I also want to steer clear of the idea that there's something "better" about Navajo, or any other indigenous, medical practice. You can't say better or worse- the terms of evaluation are embedded in the system itself. I only use it as an example because I'm able to say a few smart things about it and its very different from what I learned in school.

Tags: allopathy, bodies without lesions, frantic screaming makes me nervous, health care, herbalism, narrative theory, storytelling- the original augmented rea
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  • The Neurophysiology of Rat Park

    I appeal to the Incredibly Smart Research Psychologists of my friends to examine and correct my hubristic errors here. That's you, Z. My mother sent…

  • No More Fears, My Revolutionary Children

    This story just came out, so I haven't yet caught the wave of paranoid mailing-list exposés about it. I can predict the interpretation my…

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    I adore Amy Daczyczyn's The Tightwad Gazette. Don't you? Looking back after more than a decade, there are a number of observations I could make…